Study On The Effect Of Individualized Continuous Nursing On Children With Epilepsy And Family Life Quality

Objective To evaluate the effect of individualized continuous care model on the disease management ability and the knowledge of epilepsy disease of the carers who are taking care of the children aged 0~9 years old with epilepsy,as well as both the children and their families'quality of life,and disease recurrence of children aged 4 months.The intervention effect provides a basis for nursing and health education of epileptic children.Methods Experimental studies were carried out in the same period,and the epilepsy was diagnosed in pediatric department of Inner Mongolia Medical University Affiliated Hospital from January 2018 to September 2018 by the convenient sampling method.After regular treatment,the condition was stable and the original treatment plan should be continued.A total of 100 children with epilepsy from 0 to 9 years old were enrolled in the study.The children were divided into two groups according to the order of receiving the researchers.The odd number of children were set as the experimental group,and the even children were set as the control group.The experimental group and the control group each had 50 families.A baseline survey was conducted between the two groups of children and the hospital within 24hours of admission to the diagnosis of epilepsy within a 24-hour questionnaire and scale(general data questionnaire,epilepsy child disease and disease-related knowledge questionnaire,family management scale,quality of life measurement form summary).The children in the experimental group were asked to fill out the questionnaire for continuing care needs of children with epilepsy before family intervention.After leaving the hospital,they were provided individualized nursing services according to their needs and the continuous care plan.The content includes two parts:epilepsy disease knowledge and disease management ability;the control group children are given regular health education and discharge guidance at the treatment treatment,and they are discharged from the hospital according to the hospital routine for continuous care services.The two groups of children were re-investigated separately after the first month and the fourth month of discharge,and the questionnaires and scales were re-investigated to evaluate the family's disease management ability,epilepsy disease related knowledge,quality of life and the intervention effect of observation indicators such as the number of seizures and the duration of seizures in the past 3 months.Results a total of 100 families with epilepsy in children were selected,and finally 91families completed the study(including 45 families in the experimental group and 46 families in the control group).The rate of loss of follow-up in the experimental group was 10.00%,and the rate of loss of follow-up in the control group was 8.00%,and the total loss rate was9.00%.A baseline comparison was made on the general situation and observation indexes of the two groups of children and families,p>0.05,with no significant difference.The results show that:1.Analysis on the needs of the experimental group for continuous care:The overwhelming majority of families have the need for continuous care,but the choice of nursing implementation is different,80%of families choose health education through the network platform,71.11%choose the phone at follow-up,the selection rate for the distribution of health information was the smallest,at 51.11%.In terms of the choice of continuous care content,the demand for various care contents exceeds 60%,among which the demand for dietary guidance,life guidance,guidance during seizures and follow-up guidance exceeds 80%.2.Comparison of children in the experimental group before and after the experiment:The duration of seizures in the experimental group before and after the experiment was compared,?~2=1.457,P=0.838,the difference was not statistically significant.The number of disease episodes in the past 3 months was compared,?~2=3.566,P=0.311,and the difference was not statistically significant.3.Comparison of children in the control group before and after the experiment:The duration of seizures in the control group before and after the experiment was compared,?~2=0.650,P=0.971,the difference was not statistically significant.The number of disease episodes in the past 3 months was compared,?~2=1.320,P=0.771,and the difference was not statistically significant.4.Comparison between the two groups before and after the experiment:(1)the score of disease management difficulty:The difference between the groups was statistically significant(F=4.183,P=0.041),and the difference between the different time points was statistically significant(F=14.726,P<0.001).There is an interaction between the group and the time point(F=8.679,P<0.001).(2)the score of disease management ability:There was no significant difference between the groups(F=3.203,P=0.077).There was significant difference between the different time points(F=10.121,P<0.001).There was no interaction between the group and the time point(F=0.884,P=0.415).(3)the score of disease-related knowledge:There was a statistically significant difference between the groups(F=5.177,P=0.026).There was a statistically significant difference between the different time points(F=45.976,P<0.001).There is an interaction between the group and the time point(F=10.853,P<0.001).(4)Self-evaluation score of quality of life:The difference between groups was statistically significant(F=5.589,P=0.020).There was significant difference between different time points(F=13.132,P<0.001).there is an interaction between the group and the time point(F=4.512,P=0.014).(5)the score of life quality:The difference between the groups was statistically significant(F=4.746,P=0.032),and the difference between the different time points was statistically significant(F=21.300,P<0.001).There is an interaction between the group and the time point(F=5.904,P=0.004).(6)In the fourth month of the experiment,the duration of disease onset was compared between the two groups,?2=6.367,P=0.172,the difference was not statistically significant.The number of disease episodes in the past 3 months was compared,?2=5.368,P=0.144,and the difference was not statistically significant.Conclusion1.The caregivers who take care of the children with epilepsy have certain commonality in the choice of the content of continuous care,and the implementation methods are different.In the specific work,it is necessary to formulate a reasonable and effective individualized continuous care plan according to the specific needs and provide services.2.Individualized continuous nursing can improve the disease-related knowledge level and family life quality of children with epilepsy from 0~9 years old,and help to improve the difficulty of family disease management.It has not been proven to have a role in improving family disease management capacity and the number of 3-month episodes and the duration of each episode.