Economic Cost Investigation And Counter Measure Research On Thalassemia Major Patients Guangxi

Objectives: To understand the Guangxi Zhuang Autonomous Region betathalassemia major caused by the cost of treatment and the economic burden, and the current medical insurance reimbursement, social relief, a preliminary investigation to thalassemia disease brought about by the economic pressures, in order to further reduce the burden of thalassemia treatment and improve the poverty assistance system to provide the reality basis and policy suggestions.Methods: Take the typical questionnaire survey, the hospital of the Chinese People’s Liberation Army " the home of the thalassemia" and major medical first affiliated hospital of Guangxi medical blood two 3 armour hospital to blood transfusion or donor transplantation of a total of 300 patients with beta-thalassemia major to lean investigation survey. The study also adopted literature review and expert consultation method, such as the related medical expert interviews and other methods. Content of the questionnaire to Epidata database entry, using SPSS16.0 statistical analysis.Results:(1) Thalassemia patients in patients aged 6 years, cure cost in 1000-1000 yuan a month(49.1%), followed by 3000-5000 yuan accounted for 33.6%;And the monthly blood transfusion to iron cost are positively correlated with age;(2) children with family: family monthly income is 1000-3000 yuan, accounting for 53.6%, followed by 1000 yuan, accounting for 27.1%, the main economic source by migrant workers(53.6%) and soil(22.3%), thalassemia patients cure spend a month with those of their economic sources and average monthly income does not match;(3) thalassemia information: 81.5% of the parents don’t know oneself is to lean carriers during pregnancy, prenatal 96.6% relative knowledge to the thalassemia, which are part of the personnel engaged in medical work; Don’t do the cause of genetic screening is not enough of the thalassemia know(84.5%), followed by economic reasons, accounted for 10.3%, this part of the population distribution in remote backward areas;(4) hematopoietic stem cell transplantation: transplanting cure rate reached 80-90%, each transplant cost about 20-400000 yuan, and the thalassemia need a blood transfusion or remove iron therapy compared to save a large amount of health care costs and a large amount of blood;(5) health care and assistance: the thalassemia child health is given priority to with new farming together, accounted for 68%, followed by 25% of the urban residents medical insurance; To lean this two years as a kind of chronic, individual cities and counties can deal with "China’s new rural cooperative medical treatment special chronic disease certificate card"; Nanning city since 2013 also has put to lean into a serious illness insurance, but the highest expenses quota restrictions; Medical relief system is imperfect, the rescue object is not standard and relief standard is low, and the bailout program trival, etc.Conclusions:(1) Guangxi District thalassemia is widespread, thalassemia conventional adequate treatment costs are generally very expensive, but there are a lot of couples of childbearing age to the lean knowledge understanding;(2) In Guangxi district government attach great importance to the screening of lean, but had to save patients with thalassemia disease help rescue measures is limited;(3) Of some of the basic medical and health institutions of medical personnel to thalassemia knowledge and prevention and cure of patients intervention remains to be further improved;(4) Hematopoietic stem cell transplantation therapy, there is a huge social benefit and economic benefit, but need to relevant departments to support and provide support services;(5) The need to explore a suitable for the Mediterranean anemia in Guangxi medical comprehensive management mode, can improve the quality of the survival of this group and to thalassemia patients to reduce the economic burden.