| In 2020,the latest global cancer burden data released by the WHO’s International Agency for Research on Cancer(IARC)showed that there were 19.29 million new cancer cases worldwide,including 4.57 million new cancer cases(23.7% of the global total)and 3 million cancer deaths in China,both of which ranked first in the world.and with the increase of cancer cases,and the number of cancer patients family caregivers,they are in the process of care for cancer patients need not only focus on the illness change,relieve patients’ emotions,docking medical staff,also need to juggle working families,social events,the future development,and other aspects of life affairs,therefore suffer great physical and mental load,faced with a variety of challenges.This study emphatically from the visual Angle of social work,in the cancer family caregivers to take care of the load of ease in the process,will include breathing service,professional social work methods and effective chimeric respite service,makes caregivers on the basis of "breathing space" for social support,learning care skills,alleviate the negative mood,realize self energized,Thus,to some extent,the care load of caregivers can be relieved.In this study,a caregiving burden questionnaire(n=40)and in-depth interview(n=6)were conducted among family caregivers of cancer patients in the tumor department of X Hospital in Chengdu to understand their caregiving burden status and demand status.Based on the analysis of questionnaire data and interview content,it is found that 70% of family caregivers with cancer patients have obvious caregiving burden,among which the care time and psychological load are the most serious.Caregivers are mainly faced with four aspects of needs: knowledge and skills,support and rest,family communication,emotional regulation.Based on the above main needs of family caregivers with cancer,a practical intervention approach effectively integrated with respite services and professional social work methods was adopted.The practice is carried out in two parts: one is to provide temporary care for cancer patients by trained respite care volunteers,who take care of daily activities and help family caregivers get short respite time and space;In the other part,professional social workers used case and group work methods to intervene in the relief of caregiving burden of family caregivers with cancer patients.Through the evaluation of the practical process and effect,we found that :(1)The implement of respite volunteer service can reduce the time pressure of family caregivers with cancer patients to a certain extent;(2)Family discussion in case work helps to establish family breathing strategy;(3)The effect of respite group activity on overall caregiving burden was significant.In general,the intervention of respite care has a positive effect on the relief of caregivers’ caregiving burden.Finally,this study puts forward suggestions to optimize the practice mode from three aspects: practical intervention,social worker role boundaries and voluntary service effects.In addition,how to ensure the long-term mechanism of this practice model,how to conduct more effective monitoring and evaluation of caregivers,and how to provide targeted services to other special caregivers need to be further explored. |
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