Study On The Intervention Effect Of Family Empowerment Program On The Caring Ability Of Caregivers Of Children With Acute Leukemia

Objective:This study was aimed to investigate the intervention effect of the family empowerment program on caring ability,illness uncertainty,general self-efficacy and anxiety of caregivers of children with acute leukemia,in order to provide a scientific foundation for clinical nurses to carry out relevant intervention research on caregivers of children with acute leukemia in the future.Methods:As a quasi-experimental study,a total of 68 caregivers of children with acute leukemia who met the inclusion and exclusion criteria in pediatric hematology department of a gradeⅢ grade-A hospital in Changchun city were chosen as the research subjects.They were divided into two groups based on the order of diagnosis time of children: control and intervention,with 34 cases in each group.The control group received routine pediatric hematology care,while the intervention group received an 8-week family empowerment program based on routine care.Further implementation through clarifying problems,expressing feelings,setting goals,making plans and effect evaluation.All participants were measured by the general information questionnaire,Family Caregiver Task Inventory（FCTI）,Parents’ Perception of Uncertainty Scale（PPUS）,General Self-Efficacy Scale（GSES）,Self-Rating Anxiety Scale（SAS）at before the intervention and after the intervention.Independent sample T test,Paired sample T test,Mann-Whitney test and Chi-square test were used to compare the baseline data of the two groups of subjects,and analyze the effects of this program on caregivers’ ability to care,illness uncertainty,self-efficacy and anxiety.Results:1.The general demographic statistics of children and caregivers with acute leukemia did not differ statistically between the two groups（P>0.05）,indicating a balanced comparability.2.Compare the caring ability scores of two groups in caregivers of children with acute leukemia: Before the intervention,there was no statistical difference in the FCTI total score and dimension scores in the two groups（P>0.05）.After intervention,the FCTI score of the intervention group was lower than that of the control group（P<0.001）.The score difference between the two groups before and after intervention was statistically significant（P<0.001）.There were no statistical differences in the scores of the two groups in evaluating family and community resources and adjusting their lives to meet the care needs（P>0.05）.Compared to baseline,the FCTI scores were significantly lower in both groups after intervention（P<0.05）.3.Compare the illness uncertainty scores of caregivers of children with acute leukemia in two groups: There was no statistically difference in PPUS total score and scores of all dimensions between the two groups before the intervention（P>0.05）.After intervention,the PPUS score of the intervention group was lower than that of the control group（P<0.05）.The score difference between the two groups before and after intervention was statistically significant（P<0.001）.And there was no statistical difference in the scores for complexity and lack of information between the two groups（P>0.05）.Compared to baseline,the PPUS scores were significantly lower in both groups after intervention（P<0.001）.4.Compare the general self-efficacy scores of caregivers of children with acute leukemia between two groups: There was no statistical difference in GSES score between the two groups before the intervention（P>0.05）.After intervention,the GSES score and score difference of the intervention group was higher than that of the control group,the difference was statistically significant（P<0.05）.The GSES scores in both groups increased significantly after intervention compared to baseline（P<0.001）.5.Compare the anxiety scores of two groups of caregivers of children with acute leukemia: There was no statistical difference in the SAS total score between the two groups before the intervention（P>0.05）.The SAS score of the intervention group was lower than that of the control group after intervention（P<0.05）,and the score difference before and after intervention was statistically significant（P<0.001）.Caregivers in both groups had significantly lower SAS scores after the intervention compared to baseline,with statistically significant differences（P<0.001）.Conclusion:1.The family empowerment program can effectively improve the caring ability of caregivers of children with acute leukemia.2.The family empowerment program can help caregivers of children with acute leukemia reduce their illness uncertainty.3.The family empowerment program can improve the self-efficacy of caregivers of children with acute leukemia.4.The family empowerment program can reduce the anxiety level of caregivers of children with acute leukemia.