| As of 2009, the National Collegiate Athletic Association (NCAA) mandated that all Division I collegiate athletes participate in genetic testing for sickle cell trait; all the while, failing to recommend pre and/or post genetic counseling for this typically asymptomatic condition which has a poignant historical past associated with stigmatization. Proper education prior to genetic testing is imperative for student-athletes to build the foundation for informed consent and autonomy, as well as for the athletic staff to ensure that student-athletes are not stigmatized due to their sickle cell trait status. Consistent with the hallmarks of other genetic testing, sickle cell trait testing should also be performed in an ethical manner incorporating informed consent, autonomy, beneficence, and privacy. Through surveying the student-athletes at Howard University, their knowledge, perceptions and beliefs in regards to mandated genetic testing for sickle cell trait were assessed. The completion of this project demonstrates that there is a need for the institutionalization of a standardized protocol for all collegiate athletic programs participating in SCT testing in terms of promoting education and awareness of SCT with some form of genetic counseling/education before testing at the forefront for student-athletes, coaches, and athletic staff. This protocol will assist student-athletes in making informed decisions, and assist coaches/athletic staff in having the knowledge to protect their athletes in several facets, from stigmatization to their health and well-being. |
