Study On The Comprehensive Measures For The Participation Of Rare Social Groups In Medical Social Insurance

In our country,groups of rare diseases are not rare,but rare disease groups of the social security system is rare.About 10000000 groups of rare diseases in China,involving millions of families.Rare disease groups in China are mostly free in the medical security system,with rare disease groups is not only difficult to cure there are endless disease,poverty and loneliness.Rare disease worldwide there have been as many as 6000 kinds of rare disease groups,indeed,personalized,special,complex medical needs,there are some difficulties in the supply,but the research and practice of the international community has fully showed rare disease groups into the social medical insurance an effective way to meet the medical needs of the rare disease groups.From the medical insurance function value,national identity,civil rights and protection of the rare disease groups may choose,social medical insurance is satisfied The essential and main way of the medical needs of patients with rare diseases.The rare disease groups into the medical insurance need to have national health public financial support,effective cognition,perfect social condition and other social foundation.Specifically,China has basically have universal health coverage,multiple social security NGO,people have a certain understanding of conditions on the rare disease,but rare disease in aspects of legislation,Abraham drug related protection is not sufficient.But with some domestic provinces to try and effect from the development trend of society,all obstacles will therefore be smoothly done or easily solved the rare disease groups,into the social medical insurance system in China is feasible.The basic situation of our country,rare disease groups should adopt the mode of social medical insurance "inclusive indulgence" mode,and increase the internal co-ordination of rare disease groups based on localized management as supplementary medical insurance,and orphan drugs into the medical insurance reimbursement name In the book,will be included in a rare disease to a serious illness insurance system,construction of special assistance from enterprises and social organizations to participate in the construction of multi channel security system.In addition,to accelerate the process of legislation,strengthen government support in policy and resources.The development of a professional directory of rare diseases,and vigorously develop civil rare disease organizations,truly multi-channel protection.