Investigation On The Current Status And Factors Of Family Rehabilitation Of Children With Cerebral Palsy

ObjectiveTo study the current status and factors of family rehabilitation of children with Cerebral Palsy, analyse the existing problem in the process of family rehabilitation training, explore the factors which influence the family rehabilitation. And put forward some countermeasures for this situation, so as to improve the effect of family rehabilitation training and popularize the family rehabilitation mode.MethodsChoose the parents of children with cerebral palsy from two rehabilitation centers of hospitals in changchun, about 150 parents in total were studied by a questionnaire designed by ourselves from June 2010 to November 2010. The questionnaire is consisted of four sections: socio-demographical characteristics of family with cerebral palsy; the parents'level of knowledge about cerebral palsy; the positivity of parents participating the rehabilitation; the status of family rehabilitation and related factors. With Epidata for the data typed-in, the data was analyzed by using the Statistics Product and Solutions (SPSS13.0). The general information and status was described by descriptives such as frequency,percentage and ratio, Chi-square test for counting data, t-test and analysis of variance for measuring data, and influence factors were determined by logistic regression test.Results1. The passing rate of evaluation on parents'knowledge about cerebral palsy was only 34.2%, the average score was 4.80±1.88, most of the scores focused on points from 3 to 7, and only 8.3% parents's cores were over 80, the knowledge of parents about cerebral palsy was not comprehensive and systemic.2. The medical way of parents towards to children with cerebral palsy were tend to avoidness and surrender,50.8% parents seemed to have negative attitudes to participate in rehabilitation.49.2% could participate in rehabilitation actively.3.85.0% parents have realized the importance of family rehabilitation and 71.7% parents have taken the family rehabilitation training for children with cerebral palsy, while only 50.8% parents chose hospital-family rehabilitation mode.4. During the process of the family rehabilitation training, only 19.8% had a professional guidance,93.0% were confined to only movement function recovery, the time of family rehabilitation training which passed over one year was 12.8%, only 18.6% parents thought that the result of the family rehabilitation training is good.5.91.2% parents didn't carry out family rehabilitation training for children with cerebral palsy because they didn't understand the way and skills of training, the first way of get the rehabilitation knowledge was professional guidance, in a percentage of 88.3%,82.9% parents attributed the poor effect to the unformal family rehabilitation training,73.3% parents identified the outcomes of disease as their fist need.6. Parents' gender, the cultural degree, the relationship with children, family residence, the time of Institation-based Rehabilitation, parents'result about knowledge assessment, the posivity of participating in rehabilitation, the importance of family rehabilitation, have significantly influenced to the implementation of rehabilitation training, the difference is of statistically significance (P<0.05). There were three factors enter the regression equation by logistic regression test, such as the cultural degree, the time of Institation-based Rehabilitation and the importance of home rehabilitation.Conclusion1. The level of parents'knowledge of cerebral palsy is low, the parents'posivity of participating in rehabilitation is poor, and the parents'need about cerebral palsy must to be meet urgently.2. There are many difficulties in the prosess of family rehabilitation training, the family rehabilitation training has faild to carry out effectively, the effect of family rehabilitation training of children with cerebral palsy is poor. The hospital-family rehabilitation mode is not to be popularized.3. The cultural degree, the time of Institation-based Rehabilitation, the importance of family rehabilitation is the main factors which affecting the implementation of family rehabilitation training.4. The effect of family rehabilitation training for children with cerebral palsy can be improved, by raising the parents'understanding about the importance of family rehabilitation, enhancing the posivity of participating in rehabilitation, strengthen interventions of community nursing, and making full use of social support.