| Predictive genetic testing decisions always require thoughtful consideration of the potential harms and benefits of acquiring genetic information. The decision-making process is made more complex when the testing is requested for a child who is unable to provide legal informed consent. In such cases, the usual harms and benefits of testing are complicated by concerns about the violation of autonomy or confidentiality, the impact of genetic information during childhood, and the role of the family in the decision-making. This literature review thoroughly examines the many factors which contribute to decisions about predictive genetic testing in minors, including a detailed discussion of the many relevant issues, illustrative scenarios provided by clinicians, and a comparison of nine sets of clinical guidelines. |
