A Study On Protecting The Privacy Rights Of Biobank

With the development of scientific technologies, the creation of Biobank hasbeen a method to dig out the fundamental reasons lie in all kinds of diseases.However, Biobank is not only bring us the benefit to solve the potential disease, butalso lead us to an uncharted territory where massively with ethical and law problems,such as the right of privacy. As a result, finding a way to regulate the creation ofBiobank is inevitable and necessary. This article is mainly focused on how to regulatethe creation and management of Biobank from protecting the right of privacy.The first part of the article is going to narrow down the definition of Biobank,which has been discussed and defined as many versions in the medical and law field.Furthermore, the article has cleared out the developmental status all over the world,including UK、Ireland and so on.The second part is mainly about how it would erode the right of privacy in theway of creating and managing Biobank, including gathering the providers’information, doing the researches behind the data in the providers’ genes.Furthermore, this article wants to argue out that why the author thinks theprotection of privacy is important, considering its fundamental status in consisting ofpersonality rights、the phenomenon of leaking the information of privacy behind thegenes data、 the potential eroded rights in the way of leaking the privacy information.In conclusion, the article wants to share a way to regulate Biobank in a waybased on informed consent. And take insights into sharing with the way what UKBiobank has already taken on, which is encrypted the privacy information based onits different level of linking the privacy information to specific person.