| Objective1,The aim of this study was to analyze the survival time,quality of life and the related factors of HIV/AIDS patients,and investigate the support the HIV/AIDS patients gained and their requisition.So as to evaluate the effect of the prevention and cure strategy, and develop possible interventions for the care and treatment of HIV/AIDS patients, so we can postpone the course of disease, improve the quality of life of HIV/AIDS patients.2,Comment on the reliability, validity,responsibility and feasibility of WHOQOL-HIV-BREF in China.Methods1,Samples were chosen by using stratified sampling methods. 342 HIV/AIDS patients were selected from Wuhan, Suizhou, Daye, Yichang city, Hubei Province.231 of them were AIDS patients, for the study of survival time of AIDS patients; 166 of them were living, for the study of quality of life and requisition of HIV/AIDS patients.2,Through looking up the profiles of these patients,one-to-one investigation and interview, we collected data from the AIDS case report , epidemiologic individual case survey, medical history of and field investigation. Quality of life was measured by WHOQOL-HIV-BREF,the Sociodemographic variables and the other variables were recorded by the self-made questionnaire.3,Investigate results were entered into a database using epidata3.02, analysis performed using SPSS13.0. The main methods were: describing method; statistic test; survival analysis and multivariable linear analysis. Cronbachαand split-half reliability were used to exam the reliability of WHOQOL-HIV-BREF, The pearson correlation coefficient of scores of the and the scale and the score of the overall quality of life and general health perceptions were used to exam the validity, the significant of the critical ratio were used to exam the responsibility.Results1,Survival time of AIDS patients(1) The AIDS patients were seriously ill. Febrile, debilitation, athrepsy, cough, stomachache and diarrhea, chest distress were the most common symptoms of the AIDS patients.(2) There is a high prevalence of hepatitis B virus. Pneumocystis carinii pneumonia, AIDS dementia complex, chronic lymphocytic interstitial pneumonia were the main complications.(3)Serious infection, pneumocystis carinii pneumonia, AIDS dementia complex, organ failure, cryptosporidium enteritis and chronic lymphocytic interstitial pneumonia were the main cause of AIDS death.(4)Of 176 AIDS cases, the total mortality density after infection was 57.90/1000 p-m and AIDS related mortality density was 53.29/1000 p-m. The median survival time was 8.00 months(95% Confidence Interval: 7.87～9.13months).(5)The median survival time is related to the period when they fell ill, the clinical stage when they were detected HIV positive, the physical symptoms and the HAART treatment.2,Quality of life of HIV/AIDS patients(1)The average total QOL score of 166 HIV/AIDS cases was 77.38±1.78. Except for"spirituality/personal beliefs"domain, the scores of the other five domains and overall quality of life and general health perceptions were significantly lower than normal model nationwide.(2)The factors related to quality of life were employment, route of infection, occupation, CD4+ T cell count, physical symptoms and HAART. 3,Evaluation of WHOQOL-HIV-BREF(1)Reliability: The cronbach's alpha of the scale was 0.915,the split-half reliability of the scale was 0.899, the cronbach's alpha of six domains were 0.659～0.915, the split-half reliability of six domains were 0.543～0.789.(2)Validity: The pearson coefficient of criterion related validity was 0.735(p<0.01).(3)Responsibility: Nearly all the critical ratio of the items reached significant levels except for item 30.4,The support which HIV/AIDS patients gained and their requisition(1)Social support: 17 of 19 HIV/AIDS patients(89.7%) who were formly employed lost their job after they exposed, 86.75% patients lived with their family members; About 75% patients were helped and cared by the family members; Nearly 50% patients were helped and cared by the relatives and friends; About 30% patients were helped and cared by the neighbors and colleagues.(2) The implement of care and support policies and satisfaction of them: The support and care policies were implemented well. All patients received free health examination, consultation, preliminary screening; All most all the patients received health education and psychological support, participated in the"warm family"; More than half of the patients received free HAART, their treatment costs for other disease were derated; About 1/3 patients received money to guarante the minimum living or some other grant. About 35% patients were satisfied with the grants they received; More than 80% patients were satisfied with the psychological support they received; Nearly 80% patients were satisfied with the medical services they received.(3)HIV/AIDS patients requisition: 61.45% patient with no requisition, the other patients needed production and self-reliance technology, Living subsidy, some patients hoped to get more medical services, some patients were worried about their children's schooling. Conclusions1,The HIV/AIDS patients were seriously ill, they died soon after they got AIDS, paid plasma donors were weaker than the other HIV/AIDS patients. We should detect the HIV+ person as soon as possible, help and care them timely, HAART can prolong the life of the HIV/AIDS patients. We suggest health system to strengthen the propaganda and knowledge of AIDS, strengthen the monitoring of high-risk group, focus on the training of the medical members, enhance their knowledge and diagnosis capacity of AIDS.2,The quality of life of HIV/AIDS patients is significantly poorer than the general population. The social status and the pathogenetic condition are the main related factors. HAART can't improve the quality of life of HIV/AIDS patients well. It is necessary to ensure the legal rights of the HIV/AIDS patients. Symptomatic treatment and anti-opportunistic infection treatment may be useful, and we'd better lead the Chinese medicine in treating AIDS.The community care model should have been established more for the poorest population and peasants.3,Evaluation of WHOQOL-HIV-BREF(Chinese version): The reliability of WHOQOL-HIV-BREF is acceptable, the validity and responsibility of the WHOQOL-HIV-BREF is good. The scale is short, completing a scale needs a few minutes, so it is suitable for wide scale epidemiological investigation. We suggest a more wide application of WHOQOL-HIV-BREF to evaluate it deeply.4,Although the HIV/AIDS patients can't be accepted by the employers, the discrimination is dribbling away, and they have received support and care. The main problem now is treatment costs.We suggest to establish and perfect the rural medical security system,set up a foundation special for control and prevention of AIDS, and help them with production and self-reliance technology. So as to improve the economic status and social status of HIV/AIDS patients.
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