| For young adults with disabilities and their families, independent living is about having choice, control, opportunities, self-determination, supportive services, and preparation for the future. This is where parents and the Philadelphia Independence Network (PIN) come in. PIN is a supportive, co-ed, and parent-inspired independent living program that is situated in Narberth, Pennsylvania. PIN is also a program of JEVS Human Services (JEVS). Through the supports of PIN, young adults with disabilities are able to live independently in their own homes. This study is based on the perspectives and lived experiences of six young adults with developmental disabilities, who are all current or former members of PIN. The purpose of this qualitative action-oriented study was to better understand the positive and challenging aspects of independent living as perceived by the study participants. In addition, solicit their suggestions for improving independent living. Data were collected from the participants through in-depth interviews, and the findings are presented as individual and detailed case studies. The findings revealed that the participants viewed the positives of independent living as far exceeding the challenges. Several of the identified positives of independent living included being able to make their own rules, eat what they want, and experience the consequences of their decisions. A few of the identified challenges of independent living included having difficulty with prioritizing, time and money management, and organizational skills. Several of the participant's recommendations for improving independent living included teaching life-skills to children with disabilities early in life, having more one-to-one supports, and listening to what the person with the disability has to say. The participants concluded that having the opportunity to experience independent living with the possibility of failure was better than not having the opportunity at all. Because PIN was initiated by parents, the background and context of this study includes information specific to the PIN program, the perspectives of parents, and JEVS. As the original and former director of PIN, this study is also informed by my reflective observations and experiences. I discuss my interpretation of independence and disability, my perceptions of the positive and challenging aspects of independent living for young adults with disabilities, and my recommendations for improving independent living. |
