Font Size: a A A

Autism and post high school transition to community assisted living: Parental perceptions

Posted on:2008-03-17Degree:Ph.DType:Dissertation
University:University of LouisvilleCandidate:Marquette, Jackie MFull Text:PDF
GTID:1444390005972398Subject:Education
Abstract/Summary:
This study explored transition into community living for youth with ASD. Most individuals with developmental disabilities still do not live independently in the community. In this study of 15 young adults with Autism Spectrum Disorders who have made this transition successfully, in-depth interviews were conducted with the families who guided the youth to community living. The study sought to understand the structures and dynamics involved in creating networks of support that facilitated work, relationships, and independent residence.;Two pilot studies were conducted. The interview Schedule was tested to confirm its validity prior to using it in the main study. Second, a new rating assessment, the Capability and Independence Scale (CAIS), was developed and tested to measure the potential for community living for individuals with developmental disabilities, both with and without supports or assistance in seven life domains. An expert panel and the pilot respondents reviewed the instrument to offer feedback. Extensive data were analyzed to examine psychometric properties. Results provided strong support for the instrument's validity in both Full Scale and Summary Form versions, confirming viability of the CAIS for assessing potential for community living of adults with disabilities.;Research questions investigated patterns and themes found during the individual's transition as the family confronted limited access to governmental resources and other barriers. Included were parental perceptions of both the family and the individual with respect to residence, schooling, employment, leisure, associations/relationships, and responsibility.;Important findings included the following: the sample had two subgroups—autism and Asperger syndrome; the quality of supports, not the severity of the disability, was crucial to independent living; youth reached higher levels of functioning across all domains of living when the necessary supports were in place; families strongly valued independent living; parents were active participants and often took financial risks; the young adults possessed strengths or interests useful in employment or leisure; challenging or traumatic events before and during the transition years were followed by noticeable personal growth; and the family's quality of life and well being improved when the young adults became less dependent upon parents. Recommendations for policy, practice, and future research were offered.
Keywords/Search Tags:Living, Community, Transition, Autism, Adults
Related items