Self-management Efficacy Of Patients With Psoriasis Questionnaire Development And Its Relationship With Quality Of Life

Objective:To develop a self-management efficacy questionnaire for patients with psoriasis,to test its reliability and validity and evaluate the status of self-management efficacy and quality of life in patients with psoriasis.Research methods:1.Based on the theory of self-efficacy,literature review,semi-structured interviews,combined with the clinical characteristics of psoriasis patients to develop the item pool.Then two rounds of expert consultation and pilot test were utilized to formulate the initial questionnaire.Using the convenient sampling method,240 psoriasis patients who came from the Department of Dermatology of a tertiary hospital in Shenyang were selected as the research objects for investigation.Questionnaire items were screened by critical ratio method,the item-total score correlation analysis and internal consistency coefficient.CVI value was used to evaluate the content validity of the questionnaire.Regarding construct validity,exploratory factor analysis and confirmatory factor analysis were performed.The General Self-Efficacy Scale was used as the correlation validity of the calibration test questionnaire.Cronbach’sαcoefficient was used to assess the internal consistency reliability.To evaluate test–retest reliability,25 patients were re-evaluated after 2 weeks.The questionnaire items were divided into two parts using odd-even split halves and the correlation coefficient between the two parts was calculated to evaluate the split-half reliability of the questionnaire.2.Applying the self-designed demographic questionnaire,self-management efficacy questionnaire and dermatology life quality index to investigate the status quo of self-management efficacy and quality of life in patients with psoriasis.Patients’general data,self-management efficacy and quality of life were described using frequency and percentage,the mean±standard deviation,median and quartile.Spearman correlation analysis was used to explore the correlation between self-management efficacy and quality of life.Results:1.The self-management efficacy questionnaire for patients with psoriasis included28 items in 5 dimensions,including self-efficacy of emotional and social management,self-efficacy of daily life management,self-efficacy of skin management,self-efficacy of disease knowledge management and self-efficacy of disease treatment management.The content validity index S-CVI/AVE of the questionnaire was 0.976,I-CVI ranged from0.80 to 1.00.Exploratory factor analysis identified 5 factors that could explain 62.039%of the total variance,and the load value of all items in the corresponding dimension was greater than 0.4.The correlation coefficients between each dimension of the questionnaire and the total questionnaire ranged from 0.610 to 0.833(P<0.01).Confirmatory factor analysis showed that the model fit well(X~2/df=2.418,RMSEA=0.074,GFI=0.817,IFI=0.909,CFI=0.908,PNFI=0.768,PGFI=0.684).The criterion-related validity was 0.407(P<0.01).The overall Cronbach’s alpha coefficient was 0.930,the test-retest reliability was 0.768(P<0.01)and the split half reliability coefficients was0.952(P<0.01).2.The total score of self-management efficacy was(113.15±19.28),it was generally at a medium to high level.The total score of quality of life was 10.00(5.00,17.00),which was above the middle level.The score of self-management efficacy was significantly negatively correlated with the score of quality of life(r=-0.295,P<0.01).Conclusion:1.The self-management efficacy questionnaire of patients with psoriasis developed in this study has good reliability and validity,and it can be used to investigate the level of self-management efficacy of patients with psoriasis.2.The self-management efficacy and the quality of life of patients with psoriasis were above medium level in this study,which still need to be improved.3.The self-management efficacy of patients with psoriasis is positively related to quality of life,indicating that the higher the level of self-management efficacy,the better the quality of life.In clinical practice,medical staff should pay more attention to psoriasis patients with low level of self-management efficacy and carry out individualized self-management efficacy interventions to improve quality of life.