Study On The Effect Of Empowerment-based Education On Disease Management Ability Of Family Caregivers In Children With Epilepsy

Objective To explore the effect of empowerment-based educationinon family caregivers of children with epilepsy,the effect of intervention was evaluated from the disease management ability of family caregivers,the quality of life of family caregivers,the knowledge of epilepsy of family caregivers and the disease control of children in the past three months,so as to provide a basis for the formulation of health education for children with epilepsy and family caregivers.Methods This study is divided into two parts:the first part uses the method of semi-structured interview and intentional sampling to select 12 family caregivers diagnosed as children with epilepsy.To understand the needs of family caregivers for children with epilepsy for health education and their real experience of participating in health education.In the second part,the family caregivers of 72 hospitalized children who were treated in the Department of Pediatrics of the affiliated Hospital of Inner Mongolia Medical University from April 2020 to November 2020 were randomly divided into two groups.There were 36family caregivers of children with epilepsy in the intervention group and the control group.The family caregivers of children with epilepsy in the control group received routine health education,while the family caregivers of children with epilepsy in the intervention group adopted an one-to-one approach on the basis of routine health education to carry out authorized health education.The disease data and demographic data of children with epilepsy and family caregivers were collected by general condition questionnaire within 24 hours after admission.The family management scale-two subscales of disease management difficulty and disease management ability,epileptic disease related knowledge questionnaire and quality of life measurement table were used before intervention,1 month after intervention and 3 months after intervention.the number and duration of seizures were counted at the same time.The experimental effects of disease management ability,disease knowledge,quality of life and disease control of children in the past three months were evaluated.Results A total of 72 family caregivers of children with epilepsy were selected,and finally 68 family caregivers of children with epilepsy completed this study(including 2 in the intervention group and 2 in the control group).The loss of follow-up rate was 5.6%in the intervention group and 5.6%in the control group.1.Under the guidance of phenomenological research,the data collected by semi-structured interviews were recorded and analyzed,and four themes were obtained:health education cognition,health education methods,health education needs,and health education effect evaluation2.There was no significant difference in baseline data before intervention(p>0.05).3.Disease management ability:(1)there were significant differences in the scores of time factors of family caregivers’difficulty in disease management between the two groups(F=91.32,p<0.01),intervention factors(F=28.62,p<0.01),and interaction(F=37.5,p<0.01).The trend chart showed that the decrease of family caregivers’score of difficulty in disease management in the intervention group was better than that in the control group.There were significant differences between the two groups 1 month after intervention and 3 months after intervention(p<0.05).(2)There were significant differences in the scores of time factors of disease management ability of family caregivers of children with epilepsy between the two groups(F=57.13,p<0.01),and there were significant differences in intervention factors(F=26.95,p<0.01).The interaction was also significantly different(F=20.70,p<0.01).The change trend chart showed that the score of disease management ability of family caregivers of children with epilepsy in the intervention group was higher than that in the control group.There were significant differences between the two groups at 1 month after intervention and 3 months after intervention(p<0.05).4.Disease-related knowledge:There were significant differences in time factors of disease-related knowledge scores between family caregivers of children with epilepsy between the two groups(F=122.83,p<0.01),intervention factors(F=9.30,p<0.01)and interaction(F=9.18,p<0.01).The change trend chart showed that the score of disease-related knowledge of family caregivers of children with epilepsy in the intervention group was better than that in the control group.There were significant differences between the two groups 1 month after intervention and 3 months after intervention(p<0.05).5.Quality of life:(1)there were significant differences in the time factors of QOL self-assessment between the two groups(F=83.65,p<0.01),the intervention factors(F=8.16,p<0.05),and the interaction between the two groups(F=12.04,p<0.01).The change trend chart showed that the self-assessment score of QOL of family caregivers in the intervention group was higher than that in the control group.There were significant differences between the two groups 1 month after intervention and 3 months after intervention(p<0.05).(2)There were significant differences in the scores of time factors of family care quality of life questionnaire between the two groups(F=19.65,p<0.01),intervention factors(F=11.84,p<0.05),and interaction(F=4.28,p<0.05).The change trend chart showed that the score of QOL questionnaire of family caregivers of children with epilepsy in the intervention group was higher than that in the control group.There were significant differences between the two groups 1 month after intervention and 3 months after intervention(p<0.05).6.Comparison of observation indexes of children:(1)comparison between groups:after intervention,the number of seizures in children with epilepsy in the intervention group and the control group was compared in the past 3 months,and the difference was not statistically significant(χ~2=1.274,p>0.05).The duration of each seizure in recent 3 months was compared,and the difference was not statistically significant(χ~2=1.257,p>0.05).(2)intra-group comparison:the number of seizures in the intervention group was compared before intervention(within 24 hours after admission)and after intervention(within 3 months),and the difference was statistically significant(χ~2=19.416,p<0.05).The duration of each seizure was compared before intervention(within 24 hours after admission)and after intervention(within 3 months).The difference was statistically significant(χ~2=10.788,p<0.05).In the control group,the number of seizures before intervention(within 24 hours after admission)was compared with that after intervention(within 3 months).The difference was statistically significant(χ~2=21.945,p<0.05).The duration of each seizure was compared before intervention(within 24 hours after admission)and after intervention(within 3 months).The difference was statistically significant(χ~2=15.972,p<0.05).Conclusion1.Empowerment-based educationinon for caregivers of children with epilepsy is an effective intervention model.2.Empowerment-based educationinon is helpful to improve the disease-related knowledge,disease management ability and quality of life of the caregivers of children with epilepsy at the age of 10 years.3.It has not been proved that empowerment-based educationinon can affect the number of seizures and the time of each attack in nearly 3 months.