Life Quality Of Parents Of Children With Epilepsy And Its Impact Factors

Background:Epilepsy is a common nervous system disease worldwidly.. According to Chinese Ministry of Health statistics, there are about nine million Chinese currently suffered from epilepsy. The incidence of children with epilepsy (excluding febrile seizures) is 151/1010000, the prevaleace is 3.4 5‰, among which 82.2% of the patients is ouured less than 7-year-old, and Patients with course of more than 10 years are nearly 60%.In recent years, great concern has been given to the life quality of the patients suffered from various kinds of chronic diseases and their families. Studies on the life quality of children with epilepsy and its influential have also been completed, which show that there are two main factors including the disease itself and family environment, etc. The prevention of recurrent seizures of epilepsy is influenced by the epilepsy-related knowledge of parents, while the family environment is decided by the parents'mood. In contrust the two main factors can have certain impact on the life quality of the parents. However, few studies have been done on the life quality of these parents who suffered from chronic grief and have been seriously endangered both physically and mentally. Which has become an important public health issue. Therefore, it is urgent to research on the life quality of these parents and find out the affecting factors, which will provide the basis for effective nursing intervention. Objectives:To Learn about the parents of children with epilepsy epilepsy-related knowledge, to understand the life quality of parents whose children suffered from epilepsy and the influencing factors.Methods:It is a case-control method with the application of epilepsy knowledge scale, mental status rating scales and the general quality of life scale to the related subjects. The control group were general quality of life scale to assess its quality of life.Results:Parents of epileptic children with epilepsy overall accuracy rate of knowledge by≥80%,60%-80%,<60% were divided into high, medium and low three groups, the composition ratio is 22.4%,51.4%,26.2%. which is mainly manifested in the lack of knowledge about daily high-risk factors (puberty, strip or grid type, lack of sleep, fatigue, hyperventilation, etc). Strip or grid-shaped pattern (15.0%) due to visual stimulation can induce seizures, especially in rotation or a long time watching misunderstanding of the right dose of AEDS; and the prognosis and age of onset, the type of epilepsy awareness rate of only 29.9%; and In the education and care for the patient about 20.6% of the parents did not know how to interpret the disease or showed impatience.Psychological state of the parents:Depression with the detection rate is 81.0% (94/116), There is a negative correlation to the scores in general knowledge of epilply,while anxiety is not obvious.For parents of children with and without epilepsy::there is only statistical difference in economic conditions as to the general life quality. There are differences, between sexes. Male parents from case group and control group have the statistical difference in the factors "work and study". Within the case group male and female parents statistically show the difference, in the factors "amateur entertainment".There is a obvious statistical difference between parents' negative emotions and their overall accuracy rate in the test of knowledge of epilepsy,some even showing postative correlation, that is, the more knowledge of epilepsy,the more obvious negative emotions. Conclusions and recommendations:Parents of children with epilepsy overall rate of correct answers less than 60%,26.2%, higher than 80% of 22.4% on the knowledge of epilepsy, and the life quality of parents of children with epilepsy is in positive correlation to their negative emotions, which suggest epilepsy of children affects their parents' work and study, their social life, and increases the financial burden of the family. It is proposed that extensive health education for parents to learn knowledge of epilepsy, and reduce the effect of negative sentiment on parents can improve their life quality. So at the same time it is also proposed to increase economic relief to reduce the financial burden on their families,then the rehabilitation of psychology and solial life of children with epilepsy would be pomoted...