A Mixed Study On Psychological Experience Of Perioperative Caregivers In Children With Tether Cord Syndrome

Objective1.To explore the children with tethered cord syndrome of perioperative care inner experience.2.To definite the burden of caregivers in the children with perioperative care,discuss the burden of care and its psychological state with caregivers,self-efficacy and family intimacy and adaptability,the relationship between coping styles,look for factors that influence the burden of care for children with tethered cord syndrome caregivers psychological support,improving the quality of their care,improve the quality of life in children with.Methods1.Using semi-structured interviews of 21 cases of children with tethered cord syndrome caregivers in-depth interviews,interviews are mainly: the feeling of the care process,care for the child process have a problem how to solve,are in trouble or burden,to medical staff to give help,the feeling of the change on the lives of children and their own future.The interview data were collated and analyzed by the phenomenological Colaizzi 7-step analysis method.2.According to the results of qualitative research,use the Zarit Caregiver Burden Interview,Social Anxiety Scale,Simple Coping Style Scale,Family adaptability and cohesion evaluation scales?,General Self-efficacy Scale and designed the general information questionnaire and convenience sampling in February 2017 to December2019 in our department in the hospital and outpatient follow-up of children with tethered cord syndrome caregivers to carry on the cross-sectional survey.Results1.The perioperative psychological experience of children with tethered cord syndrome can be summarized into six major themes: heavy psychological load,heavy pressure,worry about the prognosis of diseases,desire for medical development,lack of care skills,and reconstruction of the meaning of life.2.201 caregivers care burden score(59.40±12.17);The total score of anxiety was(49.22±11.37).In the simple coping scale,positive coping scores(29.91±5.26)and negative coping scores(14.90±3.30)were scored.Family intimacy score(65.57±8.12)and adaptability score(40.80±6.21).General self-efficacy score(22.89±5.04).It showed that age,education level,family income and illness of the caregivers were the main factors influencing the burden of care with simple factor analysis.Correlation analysis showed that the care burden of the caregivers of children with tethered cord syndrome was negatively correlated with their family closeness and adaptability,and positively correlated with the severity of their illness and the caregivers' negative response(P < 0.01).Conclusion1.The perioperative nursing experience of children with tethered cord syndrome was relatively complicated: due to the successful perioperative treatment of the children,the postoperative recovery of good positive psychological experience;With heavier for children with diseases,complications,family and social support is not perfect and produce negative emotional experience,nurses should be give children's caregivers psychological debugging timely,adjust their cognitive and behavioral,integrate social medical resources,can help improve face difficulty of psychological capital in caregivers found their caregivers in perioperative psychological feelings mainly by the severity of the illness,caregivers of children social support system,traits of character,cultural background,can be divided into positive and negative psychological experience,conversion between cause and effect.Nursing staff should communicate,evaluate and understand the main psychological feelings of the cares in the perioperative stage,and take corresponding intervention measures to help the caregivers take care of the caregivers reduce the occurrence of nursing complications,improve the caregivers 'ability to adapt to and solve problems,and improve the quality of life of the caregivers and their families.2.Children with tethered cord syndrome have different levels of care burden.Caregivers culture,age,family income,self-efficacy,negative coping,children with family intimacy and adaptability and the severity of the disease are the factors that influence the care burden of caregivers can use the effective resources comprehensive assessment,positive guide and strengthen its use of social resources to improve the response capacity,the mental and physical health,emotional stability,caregivers give full play to the function of family,improve the overall level of care for caregivers,thereby improving the quality of care,improve the quality of life in children with.