Coexistence With Disease:A Study Of Pain Narrative And Social Work Intervention In Patients With Chronic Disease

Inflammatory bowel disease(IBD)is a chronic disease that occurs early and cannot be cured.It often occurs in young and middle-aged adults,with repeated attacks such as fatigue,obstruction,abdominal pain and diarrhea.Patients with inflammatory bowel disease(IBD)live in the shadow of disease attacks for a long time.Frequent drug treatment and side effects constantly affect patients’ physical and mental health and quality of life.The study,work and life of patients are interrupted or terminated due to the disease,and the stigma caused by the disease makes patients deeply troubled and their sense of self-identity is reduced.Through field investigation and interview,this study collected the basic data and interview contents of 8 patients with inflammatory bowel disease in Guangzhou L Hospital.In the field survey,it was found that compared with other types of chronic diseases,most of the patients with IBD were in the young age,and the trend of chronic diseases was obvious,and the patients’ stigma was more profound.Decline in physical functioning,reduction in social support networks,and limitations in life decisions all have an impact on patients’ daily life and life progress.In addition,there are many patients in the hospital department,and the medical staff pay more attention to the disease symptoms of patients,and it is difficult to take into account the negative psychology of patients caused by the disease.Based on this,this study attempts to explore the characteristics of patients’ negative psychology.What are the internal motivations that promote the negative narrative of patients? How does it affect the patient’s life course? How should medical social workers serve such patients? Through reviewing relevant literature,it is found that there are abundant theoretical and practical research achievements on narrative treatment of chronic patients in existing literature.However,the research on chronic diseases such as inflammatory bowel disease mainly focuses on medicine and nursing treatment,and the intervention research in the field of medical social work is not comprehensive.Based on the interview materials,the author explored and summarized the pain stories of patients with inflammatory bowel disease(IBD)supplemented by the practice of social workers’ narrative therapy and interventional service,and explored the influence of the disease on the patients’ life process through the patients’ narrative of the pain.The research found that in the psychological and emotional level,the younger chronic disease patients have more obvious negative emotions,mainly manifested as the fear,confusion and denial of the disease;Anxiety,suffering,and anger at the interruption or interruption of important life stages;The unease,embarrassment,and pain of feeling less control over one’s life.At the level of daily life,patients are also troubled by changes from “various activities” to “secluded” social way,from “popular and spicy food” to a single diet and a decline in physical function.At the level of patient role,the patient goes from “person” to “patient”,the professional is forced to become unemployed,and the “head of the household” considers himself to be a drag on the family.The changes brought by the disease may easily lead to the wrong concept of the disease,stigmatize the disease,and then affect the narrative of the disease and pain,and the “blame” way of finding the cause will affect the life course of the patients.In inflammatory bowel disease narrative therapy intervention of social work service measures will help the patients to problems,by reshaping story,witness strength and find exceptions to help director to realize unreasonable negative impact brought by the concept of disease,help them the personal experience of the construction itself more identity,in the process and disease reconciliation,coexist with disease,Towards a positive life narrative.It provides reference experience for social work to intervene in the same chronic disease group in the future,and has certain universal applicability and extensibility,and has certain significance for social work to apply narrative therapy research.