| ObjectivesTo translate the Pediatric Quality of Life InventoryTM3.2 Diabetes Module(PedsQLTM3.2-DM)into Chinese,and test the reliability and validity of the scale in children and adolescents.Family Resilience Assessment Scale?FRAS?,the Diabetes Self-management Questionnaire?DSMQ?and the Chinese PedsQLTM3.2-DM were applied to evaluate the family resilience,self-management ability and quality of life of patients with diabetes,and to analyze the relationship among them,and to explore the factors affecting family resilience,self-management and quality of life,so as to provide scientific basis for improving family resilience,self-management ability and quality of life.MethodsA total of 175 children and adolescents with diabetes who were treated in the Department of Endocrinology and Pediatrics of Grade 3A General Hospital in Yantai and Qingdao from March 2019 to August 2019 were investigated using convenience sampling.After obtaining the consent of the original author and following the Brislin translation principle,the source scale was translated,modified and semantically adjusted to form a Chinese-style specific quality of life scale for children and adolescents with diabetes.The content validity of the scale was determined by expert evaluation,exploratory factor analysis was used to evaluate its structural validity,and Cronbach's?coefficient was used to examine its internal consistency reliability.Among the children and adolescents with diabetes,the family resilience,self-management ability and quality of life were assessed using the Family Resilience Assessment Scale?FRAS?,the Diabetes Self-management Questionnaire?DSMQ?and the Chinese PedsQLTM3.2-DM.Data were established by SPSS 25.0 and the data were analyzed.The mean±standard deviation,frequency and constituent ratio were used for descriptive statistical analysis.Independent sample t-test and one-way ANOVA were used to compare the differences among family resilience,self-management and diabetes-specific quality of life of subjects with different characteristics.Pearson correlation analysis was used to analyze the relationship among them.Multiple stepwise regression analysis was used to analyze the influencing factors of family resilience,self-management and diabetes-specific quality of life.Results?1?There are 33 items in the Chinese version of PedsQLTM3.2-DM,which are divided into 4 dimensions according to exploratory factor analysis and expert opinions,including disease-related symptoms,treatment compliance,disease anxiety,communication.According to the evaluation of the expert group,the average content validity of the Chinese version scale was 0.97 and the content validity index of each item was 0.80 to 1.00.The Cronbach's?coefficient of the total scale was 0.93,and the Cronbach's?coefficients of the four dimensions were 0.89,0.91,0.83 and 0.80,respectively.?2?The average score of family resilience in children and adolescents with diabetes was 3.03±0.30.The average scores of each dimension from high to low were 3.19±0.41for adversity meaning,3.15±0.29 for positive views,3.11±0.33 for family communication and problem solving,2.93±0.39 for family ties,and 2.67±0.46 for social and economic resources.?3?The average score of self-management scale of children and adolescents with diabetes was 7.07±1.09.The average scores of each dimension from high to low were8.34±2.02 for medication,7.22±1.70 for diet control,6.91±2.24 for self-blood glucose monitoring,6.86±1.94 for physical exercise and 6.59±1.35 for follow-up.?4?The average score of total quality of life in children and adolescents with diabetes was 66.24±12.60,and the average scores of each dimension from high to low were treatment compliance 72.94±16.90,disease-related symptoms 64.60±12.78,disease anxiety 60.75±19.36,communication 57.86±23.43.?5?The results of Pearson correlation analysis showed that there was a positive correlation between family resilience and its dimensions?excluding the use of social and economic resources?and self-management and its dimensions in children and adolescents with diabetes?r=0.18?0.34,P<0.05?.Family resilience and its dimensions were positively correlated with quality of life and its dimensions?except the ability to give meaning to adversity and disease worry??r=0.19?0.52,P<0.05?.The dimensions of self-management and diet control were positively correlated with quality of life and all dimensions?r=0.15?0.43,P<0.05?.?6?The results of multiple stepwise regression analysis showed that family per capita monthly income??=0.24,P<0.01?was the influencing factor of family resilience.The family per capita monthly income??=0.23,P<0.01?,gender??=-0.23,P<0.01?,family elasticity??=0.21,P<0.01?,the education of main caregivers??=0.19,P<0.01?were the influencing factors of self-management.Family communication and problem solving??=0.28,P<0.01?,physical exercise??=0.26,P<0.01?,use of social and economic resources??=0.25,P<0.01?,gender??=-0.17,P<0.01?,age??=-0.16,P<0.01?were the influencing factors of quality of life.Conclusions?1?The Chinese version of the PedsQLTM3.2-DM scale has good reliability and validity,and can be used as a simple tool for children and adolescents with diabetes at the age of 8 and 19 to self-evaluate their specific quality of life.?2?The scores of family resilience,self-management and quality of life of children and adolescents with diabetes were in the middle level.?3?There was a pairwise positive correlation between family resilience,self-management and quality of life in children and adolescents with diabetes.The higher the flexibility of the patient's family,the higher the ability of self-management and the better the quality of life.?4?The higher the per capita monthly income of children and adolescents with diabetes,the stronger the family resilience;Men,the higher the education of the main caregivers,the higher the per capita monthly income of the family,and the higher the family resilience,the better their self-management ability;the male,the younger the age,the higher the physical exercise compliance,the better the family's use of social and economic resources,and the higher the family communication and problem-solving ability,the better the quality of life. |
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