The Research On Primary Caregivers Of Patients With Glioma Care Burden And Quality Of Life And Its Influencing Factors

Objectives: To learn caregiver burden, quality of life (QOL) and experience of care givingamong the primary caregivers with glioma. To identify their influence factors and explorethe correlation between care burden and QOL. The results will be provided researchfoundation to the development of clinical care intervention strategies, reducing the careburden of primary caregivers and improving their QOL.Methods:1.The qualitative and quantitative research methods were combined in this study,and composed of175glioma patients and their primary caregivers in October2013-2014from three hospitals of Changchun City.2. Quantitative Research methods: Glioma patients use self-compiled generalinformation questionnaire to learn their general information. Their primary caregivers usegeneral information questionnaire to evaluate their general information; use the burden ofcaring Scale (ZBI) to evaluate the level of burden; use cancer-quality of life (C-QOL) toassess the current situation of their QOL.3. Qualitative Research method: A phenomenological study was used in this study,18primary caregivers of glioma patients were selected to-face, in-depth interview of individualstyle by purpose of sampling methods. The data were collected by semi-structuredinterviews.4. The data were established by Epidata3.0software.SPSS17.0software package wasused for descriptive statistics, analysis of variance, regression analysis, and so on.Interviews with the text information to Colaizzi phenomenological analysis as a guide,organize, analyze, and refine the final theme.Results:1. Results of quantitative research about primary caregiver care burden and QOL(1)The results showed that the total score of burden in175primary caregivers ofglioma patients （33.76±10.12）points，including18cases of mild burden, accounting for10.28%；101cases of moderate burden，accounting for57.71%；56cases of severe burden,accounting for32.01%。By ANOVAand multiple linear regression analysis showed that the burden of care was significantly associated with whether to take care of other familymembers, family income, and the relationship with the patient, the patient informed of thetumor and tumor stage of patients(2)The results showed that the total score of QOL in175primary caregivers of gliomapatients （114.91±14.31） points, including physical health status(PS), mental healthstatus(MS), social health concern(SC), spiritual health status(SS) scores were fourdimensions(23.99±5.37)points,(23.17±6.37)points,(25.97±7.42)points,(41.77±7.54) points.By ANOVA and multiple regression analysis showed that QOL was significantly associatedwith caregiver’s age, education level, with or without co-caregivers, with or without chronicdiseases, take care of other family members, current residence, cancer patients and theirtumors informed staging.(3)The relationship between Glioma patients with primary caregiver care burden andQOL is significant positive. The heavier burden indicated the lower QOL.2. Results of qualitative research about experience of care giving(1)the common pressure feeling of primary caregiver were the physical andpsychological pressure, economic pressure, the limited personal time, personal lifestylechanges, and so on.(2) The presence of uncertainty of the primary caregiver was the patient’s surgical risk,prognosis and their ability to care for patients.(3)the facing difficulties of primary caregivers were lack of disease knowledge、careknowledge and so on.(4) Most of primary caregivers were tend to take a more passive compromise style toalleviate care burden for them and actively style for their patients.Conclusions:1. Care burden was prevalence in primary caregivers of patients with gliomaand their QOL was generally low, especially in the physical health status（PS）and mentalhealth statu（sMS）. Primary caregivers experience significant negative. Clinical staff shouldfocus on primary caregivers’ synchronization to improve the degree of their attention,especially in the health of their physical, psychological.2. Primary caregivers’ care burden and QOL is multidimensional, complex concept, bythe various impacts from primary caregivers themselves, patients and families, and the care burden for a negative impact on QOL. Prompt the clinical staff should be a comprehensiveassessment of the burden of care for primary caregivers, and their QOL, formulate timelyand effective nursing intervention, to reach the purpose of lighten their care burden andimprove their QOL.