Evaluation Of The Measurement Of Self-Perceived Burden For Cancer Patients And Study On The Influence Factors Of Self-Perceived Burden

Objective The purpose of this study was to translate the Self-perceived Burden(SPBS)into Chinese and evaluate the psychometric properties of this version for cancerpatients. Descripting the status of self-perceiced burden of cancer patients andexploring the influence factors of self-perceiced burden. Constructed of a structuralequation model of self-perceived burden and its influence factors in cancer patients.Comprehensive and systematic understanding of cancer patients’self-perceiced burdenand provide the basis for targeted care.Methods Firstly, in this study, a two-phase design was used. Phase I involved iterativeforward-backward translation,testing of content validity(CVI)and a pretest. Phase IIestablished the psychometric properties of the Chinese version SPBS. A conveniencesample of220patients at the treatment stage from one Oncology Ward in AnHui fromNovember2011-April2012were recruited for evaluation. A random sample of30patients were retest in one week to see test-retest reliability of the Chinese version ofSPBS. Reliability evaluation we use Cronbach’s alpha coefficient and test-retestreliability, evaluation of the validity including content validity, face validity andconstruct validity. Secondly, a cross-sectional survey was carried,269cancer patientswere recruited continuously by convenient method in the Oncology Ward in AnHuifrom May2012-August2012.The patients were investigated with Demographicvariables collect questionnaire,Self-Perceived Burden Scale, the Social Support Rating Scale, Cancer Coping ModesQuestionnaire and FACT-G Self-rating Scale. Thecaregivers were were investigated with Caregiver Reaction Assessment. The SPSS13.0softwere was used to analysis data and the AMOS17.0softwere was used to construct amodel of SPB and its influence factors.Results Firstly,(1)The Chinese version of SPBS comprised8items and it is easy to fillout. The scale has good content validity, S-CVI is0.95; The scale has good constructvalidity, exploratory analysis showed that the most interpretable solution consisted of2factors which explained61.004%of variance of the total scale; item analysis showedthat, the coefficient of correlation between the item “I am confident that my caregivercan handle the demands of caring for me”and the total score of SPBS is-0.018, thecoefficient of correlation between other items and the total score of SPBS is0.598-0.791,P0.01.(2)The Cronbach’s α coefficient was0.874. Meanwhile, the retestcoefficient was0.769. Secondly,(1)The average score of SPB was20.59±6.38.(2)Single-factor analysis showed that patients with different education level, place ofresidence, finacial status, employment status, caregiver gender, KPS function scorehave different SPB(P0.05).(3)SPB and social support (r=-0.174, P0.01), theutilization of support (r=-0.182, P0.01), subjective support (r=-0.122, P0.05) hadnegative correlation, and SPB and confrontation (r=-0.159, P0.01) had positivecorrelation,SPB and avoidance (r=0.144, P0.05), resignation (r=0.216, P0.01),fantasy (r=0.203, P0.01), catharses (r=0.273, P0.01), financial problems (r=0.283,P0.01), distrupted schedule (r=0.223, P0.01) had positive correlation.(4)Logisticregression analysis showed that social support,financial problems,distrupted scheduleand catharses were influence factors of SPB.(5)The structural equation modelof SPBhas a good fit.The model showed that social support, catharses and caregivers(including financial problems, distrupted schedule) influence SPB,effect coefficientwere-0.19、0.27、0.43. At the same time,the several variables had interaction. Conclusions It suggests that the8-item Chinese version of the SPBS has goodreliability and validity, which could be used as a tool for measuring cancerpatients’burden. The SPB is prevalence in cancer patients. Different demographicscharacteristics of the patients had different SPB. Social support, financial problems,distrupted schedule and catharses were influenced factors of SPB. The structural modelsuggests that clinical care should pay attention to assess the patient’s social support andcoping style to provide patients with professional social support and optimize thecoping style.