Construction Of Fatigue Management Protocol For Young Cancer Patients Based On Mhealth Application

[Objective]To understand the experience and preference of young cancer patients in using mobile health applications,explore the key points of management of cancer-related fatigue,build a fatigue management protocol for young cancer patients based on mobile health applications,design and develop an application for cancer-related fatigue management,and make a preliminary evaluation of the application.[Methods]1.Protocol formation:Firstly,the qualitative research method was adopted.Young cancer patients in the medical oncology ward were included as the interview objects,so as to explore the use experience of young cancer patients on health apps,and to summarize their preferences and habits in the use of health apps.Secondly,based on the evidence-based results of cancer-related fatigue and mobile health,combined with relevant professional materials such as guidelines and books,the key points of fatigue management were extracted and sorted out.Finally,according to the previous qualitative research and evidence-based screening,combined with self-efficacy theory,a mobile app-based fatigue management program was developed.Finally,based on qualitative research and evidence-based results,combined with self-efficacy theory,a fatigue management protocol based on mobile health applications was developed.2.Protocol revision:This part adopted Delphi expert consultation.Experts in relevant fields were invited to participate in the study,and questionnaires were sent to them.Collect and collate the suggestions and evaluation results,and modify the protocol contents according to the suggestions.3.Development and preliminary evaluation of fatigue management application:Build a health app development team.Design and design and develop the application program according to the formulated fatigue management protocol for young cancer patients.The feasibility and effectiveness of fatigue management application were evaluated through a 2-week suitability study.The evaluation criteria included self-efficacy score,cancer-related fatigue score,application satisfaction,application usage,and qualitative data provided by patients.[Results]1.A total of 12 young cancer interviewees were included in the qualitative research.According to the interview data,four themes were summarized:Differences in usage attitudes;Lack of functional development reduces the user experience;Aspire to a professional operation;Recognize the development prospect and look forward to further improvement.The preferences and demands of young patients for health applications are summarized as hospital dominance,autonomy,evaluation feedback,popular science information,online consultation,and experience sharing.Eleven experiments were included in this study,and the intervention content was extracted to summarize four key points of fatigue management:fatigue related topics(fatigue cognition,diet,sleep,exercise);fatigue diary;Behavior plan;Health monitoring.According to the self-efficacy theory,reference professional data to complete the fonnulation of the protocol.The protocol consists of five modules:science popularization of fatigue,planning,forum,monitoring and personal center.2.According to the Protocol content formed in the early stage,the expert letter questionnaire was prepared,including 5 first-level indicators and 39 second-level indicators.Sixteen experts were included for two rounds of expert consultation,and the authority coefficient was 0.88,the response coefficient was 94%and 100%,and the Kendall’s W was 0.246-0.327,P<0.001.The revised protocol comprises 5 primary indicators and 49 secondary indicators.3.Development of a fatigue management application for young cancer patients in accordance with the revised protocol.Eleven young cancer patients in chemotherapy stage were included for preliminary evaluation.In 2 weeks,the patients logged into the application 727 times,33 times per person per week.Most participants responded well to the experience,but there are still problems in interface design and teaching content,which need to be further improved.Before and after the study,self-efficacy score and cancer-related fatigue score showed a positive trend,but there was no statistical significance.[Conclusion]1.This study clarified that young cancer patients have diverse usage habits and preferences for mhealth applications through a qualitative study.In similar studies,the needs of mhealth applications should be fully considered on the basis of disease management to ensure research compliance.2.This study combined qualitative research and evidence-based results to formulate the items and specific contents of CRF management protocol,which has certain guiding significance for the CRF management of young cancer patients.3.This study built a CRF management protocol for young cancer patients based on mhealth application,and developed a CRF management application.The process was scientific and reliable.The usability study showed that the protocol is feasible,which lays a foundation for the subsequent CRF online management and provides reference for the development of mobile health in China.