| Siblings of children with genetic conditions may experience a wide array of concerns that are influenced by numerous variables. In this study, 117 genetic counselors were surveyed to determine the current genetic counseling practice and resource needs for siblings of children with a genetic condition that is typically life threatening in childhood and siblings of children with a genetic condition that is typically not life threatening in childhood. In general, genetic counselors were more comfortable discussing genetic implications than psychosocial implications for siblings, more often initiate discussion about genetic implications and carrier testing over more emotional concerns, and would like more resources regarding most topics that they less frequently discuss. Respondents reported to be more comfortable discussing genetic and psychosocial implications for siblings of children with a genetic condition that is not life threatening, but the comfort levels when discussing psychosocial implications for siblings of children with a life threatening genetic condition increased as the number of years a counselor has been practicing increased. Experience and training may have an impact on if and how often counselors incorporate discussions about siblings in their sessions. Overall, respondents indicated a need for the development of more resources for siblings of children with a genetic condition. |
